By Julie Fisher People often tell me they don’t know how I do it when it comes to my son Darcy because he has Down syndrome. Well, at least I think that’s why they say this. It’s actually never mentioned. I’ve always found this quite puzzling because he is, first and foremost, my son. The …
We talk to two mums about their children’s tube feeding journeys and the ways they are giving back to the tubie community. Stacey Phillips has tube fed one of her sons since he was nine weeks old and is on a mission to brighten up the lives of those in a similar situation. Queensland-based Stacey …
Sponsored content Finding trustworthy and reliable support workers for your child is tough enough, but it can be even more difficult if you live in regional or remote areas. For Anne and John Page, raising their daughter with Down syndrome in the small township of Birchip in the Mallee region of Victoria, population 700 people, …
Overcoming the challenges of finding support workers in regional and rural areas Read More »
It’s Tube Feeding Awareness Week from 5 to 11 Feb. Mum, Kate shares the story of her daughter Liv. Liv is turning 8 during Feeding Tube Awareness Week! Liv is a beautiful girl that loves nothing more than to dance, play with her sister and friends, and watch scary movies or go on a ghost …
By Naomi Sirianni Parenting: even without disability, we love them but damn we want our own time, right? Or do we? The long summer school holidays are always a pickle when it comes to prioritising and balancing (or juggling) work and keeping the kids entertained. My husband and I share the load where possible and …
The balance of having time away from our kids, does it exist? Read More »
We sat down with Julie Fisher and chatted about the change that comes from being a parent-carer to a child with a disability. How has being a special needs mama changed you? Julie: My life as a special needs mama began before my son Darcy was born as we received a positive diagnosis of Down …
By Rachel Williams February 14 is HeartKids Sweetheart Day – raising funds and much-needed awareness of congenital and childhood-acquired heart disease. When one of your miracle babies is diagnosed with a major heart condition in-utero, and then needs major surgery during the middle of a global pandemic, it’s an understatement to say the journey of …
By Nicole Hurley It’s not an advent calendar for everyone, it’s for parents of children with additional needs who really struggle in the 6-7 week summer break (that’s about 42 days give or take depending on the school setting your child is in, and no, I am not counting!) It’s not about not wanting to …
There needs to be a new countdown calender for back to school Read More »
By Rebecca Glover I popped on here with the thought to sit and write an inspiring, uplifting and encouraging article for the start of 2023, and believed I knew what would flow on to the page. However, I made one mistake- I found my little green book dating back to the year 2009. This little …
By Naomi Sirianni January is Coffin Siris Awareness month. Pot luck. It’s just pot luck. Those words bellowed out of our geneticist’s mouth 6 years ago. Words we won’t forget. Our youngest son Archer is 10 years old and has a rare genetic syndrome called Coffin-Siris Syndrome. These rare syndromes stay relatively unknown but all …
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