Undiagnosed Children’s Awareness Day and SWAN’s 10th Birthday Celebration Sunday, 23 October – lunch in Melbourne and morning tea picnics in other cities Join in the fun! Melbourne – The Big Goose, 10:00 AM – 4:00 PM. Please click here to register. Sydney – Livvi’s Place Five Dock, 10:00 AM – 12:00 PM. Please click here to register. Newcastle – Blackbutt Nature Reserve, 10:00 AM – …
By Kelly Wilton The other day Facebook popped up a photo that I hadn’t seen for a while. It was a 6 year old photo of when my son, Mikey, first became sick. He was sitting up in his highchair with his little lopsided smile – which we thought at the time was caused by a stroke. He was out of …
Seeing things in a new light: it’s the little things Read More »
By Kelly Wilton As parents of children with disabilities and complex conditions, we understand all too well the toll that extra challenges can take on our emotional and physical health. Did you know that typically as a carer we statistically have the lowest levels of wellbeing of any Australian group? This leads to poor physical …
By Kelly Wilton QUESTION Let’s talk stress relief! Can you share your quick five-minute stress relievers – what works for you? 5 minutes in my hammock out on the back deck is enough to regroup and calm me. No technology, just breathing with the branches. I use a mindful meditation app called Abide and then …
By Natalie Brobin “You know more than the cardiologist!” My husband, Steve, said this after an appointment with our daughter’s cardiologist. Previously, I had tried to explain to the doctor what I had learned at a recent conference about our daughter’s genetic disorder, Turner syndrome (TS) and how it related her cardiac issues. He didn’t …
By Susie Hopkins It’s a heart-breaking reality that as humans we tend to behave in ways that push others away when we need them most. As mums of kids with neurodevelopmental conditions such as ADHD and autism, we see this all too often. Before I learned about autism and how to meet my son’s ever-changing …
By Kelly Wilton Recently I had an NDIS review meeting. You know the ones that make you feel sick leading up to it (don’t they all?). The preceding months had been a not-so-merry dance of collating paperwork “evidence” and going back and forth between several parties, for nearly 12 months. We’ve never had a great …
The LAC questions you actually don’t need to answer Read More »
By Patricia Kormendy All parents struggle and worry about our children’s futures, however, I think us parents of children with disabilities have unique concerns that we worry about constantly; about doctor appointments, therapy appointments, about school, about schedules, finances, friendships, relationships with our spouses, and our other children. Each of our journeys is unique and …
By Zoe Gow Letting kids make mistakes, letting them fail, letting them feel rotten. It’s hard when we try instinctively to protect our kids. But for our kids to learn how to self-manage, it’s something we must do. My girls are 15 and 13 and they are both living with POTS (Postural orthostatic tachycardia syndrome). When they …
By Source Mama I am a mum and primary carer of an adult son with complex needs. I am proud of my son, his accomplishments, his talents, his humour, his heart, his soul. I love him with all my heart, just as I do my other children. They are a part of me: a part …
I am a mum and primary carer of an adult son with complex needs Read More »
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