By Kelly Wilton The infamous day of love is here – Valentine’s Day. How do you possibly keep a spark going when you haven’t a spark to spare?! We completely understand if it’s not on your list of high priorities. As special needs parents in a COVID world, it’s hard to keep the love going …
By Rachel Williams October is World down syndrome month. As older parents, Cally and Nigel Ward always knew there was a possibility of having a baby with Down syndrome. But not once did it deter them from creating the baby of their dreams. Their baby, Sarah, is now 12 and is an integral member of …
By Kelly Wilton With October being ADHD awareness month, it only recently dawned on me that this is the first year of adding this very important acronym to our family list of diagnoses. Families with kids with co-morbidity health issues, know only too well that we can’t deal with everything at once. Different things – …
By Lani Knutson We moved to Milwaukee in the US when our son, Peter, was a baby. At that point, we already knew something was wrong. He had been diagnosed with torticollis (a common occurrence in babies today) at Seattle Children’s Hospital, so we immediately set up appointments with the Craniofacial Specialist and Physical Therapy at …
By Natalie Brobin When my best friend died suddenly, I completely fell apart. I didn’t have the tools for self-care or if I had them, I couldn’t access them. I was miserable and so was everyone around me. I had numerous PTSD symptoms but didn’t know what to do with them. I held my breath …
By Natalie Brobin I always knew exactly what was going on in my daughter’s health. I spent hours researching her various health conditions. Whenever she received a new diagnosis, I would head to the computer and do my research on how to manage it. If someone asked me how I was doing, I would end up …
8 ways to practice emotional self-care when you parent a medically complex child Read More »
By Susie Hopkins For so many mums of kids with disabilities, 2020 and 2021 have been next level stressful. We’ve been in harsh, extended lockdowns so much of the time, especially here in Melbourne, and the impact of Coronavirus has been so difficult in so many ways. Financially, emotionally, you name it. It has been …
When times are tough get back to the basics of self-care Read More »
By Kelly Wilton The recent R UK OK day got me thinking about how many of us really aren’t ok. As parent-carers we have a role that is very different to that of typical parents. And this is not a comparison chart or a shout out of ‘who does it harder’. As I have said …
By Susie Hopkins There’s not a mum alive who doesn’t wonder what the future holds for her children. This causes a whole other level of worry though if your child has a disability. With my son, Harry, for example, I have no idea whether he will be able to live independently or not as an …
By Kelly Wilton This isn’t a complete list, and my list is going to differ from your list – because that’s the point isn’t it – we’re all so different and unique. It’s a bit of fun though to take a light-hearted look at ourselves, and you might catch a glimpse of your own family …
5 ways to tell you might be from neurodiverse family Read More »
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