A source Mama story

How did you first become aware that there might be a concern about your child’s health or development? What were the early signs that led you to seek a diagnosis? When Madison was a baby she was initially reaching her developmental milestones until around 18 months old, then something changed, or maybe it didn’t because …

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When there are no answers

By Heather Renton, Founder of SWAN Australia In a world where finding answers can be overwhelming and isolating, Syndromes Without a Name Australia stands as a guiding light for families navigating the realm of undiagnosed genetic conditions. Swan Australia is the national peak not-for-profit organisation representing approximately 2500 children born every year in our country …

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