There will be times throughout your child’s life when you will feel the need to step in and advocate on their behalf. As parents of children with disabilities, we get quite used to speaking up on their behalf; making (seemingly) simple requests of school, therapists, etc, but sometimes the advocacy needs to be more formal …
Cally Ward, proud mum to Sarah, a 14-year-old who has Down syndrome, chatted with us so we could gain a deeper understanding of the evolving landscape surrounding awareness, acceptance, and advocacy in the Down syndrome community. Cally wears three hats; an everyday mother to a teenager, an advocate for Sarah as a person with disability, …
By Autism Awareness Australia For autistic children and their families, Christmas can be exciting and daunting all at once. In the spirit of the twelve days of Christmas, we’ve got twelve tips for not only surviving but enjoying this festive season: 1. Prepare, prepare, and prepare some more. A lot of changes occur around Christmas …
By Maya Pinn 24-year-old Maya is mum to Lloyd (6). She is a recent university graduate, admin for Swan (Syndromes Without A Name) and owns RareWear – an adaptive clothing brand for children. How did you first become aware that there might be a concern about your child’s health or development? What were the early …
By Christine Cronin It’s December. Officially Christmas. The start of this season, fills my insides with a mixture of joy, anxiety and sadness every year. Joy for all that it is. Anxious for what it might be. And sadness for everything it isn’t. Christmas’ gone by were easier when he was little. I mean, looking …
By Kym Mason Thank you to Kym for sharing her Source Mama story with us. How did you first become aware that there might be a concern about your child’s health or development? What were the early signs that led you to seek a diagnosis? We actually didn’t seek a diagnosis, it found us. Frankie …
Claiming our rights this International Day of People with Disability (IDPwD)People with Disability Australia – MEDIA RELEASE On this International Day of People with Disability (IDPWD), People with Disability Australia (PWDA) reflects on another year of advocating for the rights of all people with disability to live in a future that is fully inclusive where …
By Naomi Holdt, Psychologist This past week I had a conversation about the holidays and Christmas with a teen patient. He told me that he had heard that the happiest people put their Christmas trees up early. I responded that putting a tree up almost brings hope- the end of a very long year is …
SSADH (Succinic Semialdehyde Dehydrogenase Deficiency) affects around 400 people worldwide. Source Mama, Jayde, shares her family’s story with us. How did you first become aware that there might be a concern about your child’s health or development? What were the early signs that led you to seek a diagnosis? Indi was our first baby, so …
Stories with soul: Source Mamas raising their kids with disabilities. The tears, the triumphs, the raw and the real. How did you first become aware that there might be a concern about your child’s health or development? What were the early signs that led you to seek a diagnosis? My pregnancy was pretty uneventful …
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