By Lani Knutson At our older son Peter’s 4-month check up, we mentioned to his pediatrician that we noticed that he only turned his head to the left when he laid on his back. We felt something was wrong, but his pediatrician dismissed us saying that he was fine and he would grow out of …
By Natalie Brobin “You know more than the cardiologist!” My husband, Steve, said this after an appointment with our daughter’s cardiologist. Previously, I had tried to explain to the doctor what I had learned at a recent conference about our daughter’s genetic disorder, Turner syndrome (TS) and how it related her cardiac issues. He didn’t …
By Susie Hopkins It’s not surprising that mums who care for kids with disabilities are more likely than most to have to contend with a lot of difficult thoughts and emotions. During tough times it is both normal and healthy to experience a full range of emotions – including for example anger, fear and even …
How to deal with difficult thoughts and feelings Read More »
by Susie Hopkins Parenting a child by yourself is tough. Parenting a child with special needs by yourself is even more so. People often ask me how I do it. They even call me a super mum and generally admire how, for the most part, things are going really well. But they only seeing part …
How I parent my autistic son solo, run a business and thrive (mostly) Read More »
The Healthy Mothers, Healthy Families program is full of informative ways to help improve the wellbeing of mothers of children with a disability. Through identifying changes you want to make, it will guide you along the process of working out what to change, how to change, and then the process for the change to occur. …
by Natalie Waddell I am Natalie. I live in Brisbane with my husband, two sons and two 4 legged Oodles. My youngest son, Tom, has 1P36 Deletion Syndrome. He is a determined, out-going, cheeky, stubborn and mostly happy tween! He is also non-verbal and incontinent, has complex health issues, receives his nutrition via tube, unable to walk independently and …
By Natalie Brobin Keep it simple. Breathe. One of the best things we can do for self-care is to breathe. It sounds so simple, doesn’t it? However, during our busy day, we may not notice that our breathing is off. After all, we breathe normally whether we focus on it or not, right? Wrong. In …
By Laura Spiegel A piercing shriek shatters the silence, followed by the sound of laughter ringing. A child is basking in the last threads of daylight, bare feet and muddy, his smile as big as the sky. As I wave from afar, I am flooded by the strongest sense of sadness. It cuts through me …
By Kelly Wilton Just when I think that people ‘might get it’, I realise they don’t get it. At all. It’s just little things, you know? Like trying to get a functional morning routine together. Sounds easy. Rise 15 minutes before everyone else, have a quiet cup of coffee before the rest of the house wakes, get …
A lesson from my son on how little moments matter Read More »
By Laura Spiegel A friend describes her son’s graduation to the cancer survivor’s clinic. She’s ecstatic that he’s made it. She’s devastated for those who haven’t. She’s embarrassed to be sobbing on a day for celebration. An acquaintance describes her time in the local children’s hospital. Her heart breaks as the life she’s imagined for …
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