By Natalie Brobin “You know more than the cardiologist!” My husband, Steve, said this after an appointment with our daughter’s cardiologist. Previously, I had tried to explain to the doctor what I had learned at a recent conference about our daughter’s genetic disorder, Turner syndrome (TS) and how it related her cardiac issues. He didn’t …
By Susie Hopkins It’s a heart-breaking reality that as humans we tend to behave in ways that push others away when we need them most. As mums of kids with neurodevelopmental conditions such as ADHD and autism, we see this all too often. Before I learned about autism and how to meet my son’s ever-changing …
By Kelly Wilton Recently I had an NDIS review meeting. You know the ones that make you feel sick leading up to it (don’t they all?). The preceding months had been a not-so-merry dance of collating paperwork “evidence” and going back and forth between several parties, for nearly 12 months. We’ve never had a great …
The LAC questions you actually don’t need to answer Read More »
By Patricia Kormendy All parents struggle and worry about our children’s futures, however, I think us parents of children with disabilities have unique concerns that we worry about constantly; about doctor appointments, therapy appointments, about school, about schedules, finances, friendships, relationships with our spouses, and our other children. Each of our journeys is unique and …
By Zoe Gow Letting kids make mistakes, letting them fail, letting them feel rotten. It’s hard when we try instinctively to protect our kids. But for our kids to learn how to self-manage, it’s something we must do. My girls are 15 and 13 and they are both living with POTS (Postural orthostatic tachycardia syndrome). When they …
By Source Mama I am a mum and primary carer of an adult son with complex needs. I am proud of my son, his accomplishments, his talents, his humour, his heart, his soul. I love him with all my heart, just as I do my other children. They are a part of me: a part …
I am a mum and primary carer of an adult son with complex needs Read More »
By Linda Williams Life is made up of a series of experiences, isn’t it? All the good ones, the bad ones and everything in between – they combine to fill our lives and serve to make memories, lessons to learn from and more. Certain experiences are milestones in growing up while others are markers in …
By Source Mama As mamas & carers of children with a disability, we all naturally feel the pressure of modern life. Add to that, juggling appointments, diets, medication, schooling, work, siblings and well, life in general, it can get pretty busy! We often underestimate the amount of pressure that rests on our shoulders – both …
By Dr Kelly Bowers – Clinical Psychologist, YouThrive Integrated Therapy Services Failure to care for ourselves today places us at higher risk of experiencing poor emotional and physical health in the (not so distant) future; including some cancers, heart disease and mental illness, to name a few. Let me introduce you to a new term, …
Signs to look out for when it’s time to ask for help Read More »
By Rebekah Devlin Exhausted. It’s the word that came up repeatedly in our inaugural Source Survey. We’re exhausted from two years of Covid, from lockdowns, from isolation due to immuno-compromised kids.Isolation that still hasn’t ended.Exhausted from trying to make telehealth work and from all the running around to the various appointments, from trying to squeeze …
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