By Kat Barlow: Empowerment Ethos The phone rang, it was the call we had been waiting for. It had been years of challenging struggles with so many doctors to get this MRI done. To see what’s going in inside Noah’s brain. Everyone kept saying they wouldn’t find anything. My gut told me otherwise. I picked …
By Kellie Galvin How did you first become aware that there might be a concern about your child’s health or development? What were the early signs that led you to seek a diagnosis? At around 18 months I began the questions with our GP, plus my son’s childcare centre as Jacob wasn’t talking and he was …
A journey through diagnosis and toward hope: Kellie Read More »
By Kelly Wilton It was only the other day that I felt a huge relief lift off my shoulders. A check up with my son’s nuero with a kind and compassionate specialist who really looked at me and said “what you do is not typical. It is more than a lot of parents. You have …
By Julie Fisher 1. How did you first become aware that there might be a concern about your child’s health or development? What were the early signs that led you to seek a diagnosis? We received a pre natal diagnosis and the first inkling of Down syndrome was during the first ultrasound. While I was …
A journey through diagnosis and toward hope: Julie Read More »
By Kat Barlow: Empowerment Ethos I know that when things get hard I start to make up stories in my head. “If I don’t talk about it my mates that will make it easier…they don’t want to hear about my stuff…they won’t understand what I am going through…it will be easier to just detach…I don’t …
By Jodi Shenal In most rooms that I find myself in, I always feel like I don’t quite belong. When the conversation is steered towards parenting, no matter the company I’m in, I am always a bit out of place. Anytime I’m surrounded by other parents discussing all the “typical” childhood things, I can imagine what an alien who …
22 July is Fragile X Awareness Day. Our family is Lisa and Michael and our 4 children: Dylan (11), Braden (8), and twins Marcus and Lucas (5).I am a Fragile X carrier and so is Dylan. Braden and Lucas have Fragile X syndrome. Braden was born with a condition called Pierre Robin Sequence, which led …
Sponsored content “When Carer Solutions came on board with us, it was during one of those intense periods where we were just so tired,” recalls mum of five, Sarah Chignell. Sarah and her husband Stuart have five children, including Eadweard, 15 who has an extremely rare genetic disorder. Sarah said it was a care coordinator …
We bring you a series of short reads from women just like you. Source Mamas raising their kids with disabilities. The tears, the triumphs, the raw and the real. What’s your name and where do you live in Australia? I’m Jules and I’m from Melbourne, Vic. What’s your story, who are you and how …
5 minute cuppa time with Source Mama: Julia Ryan Read More »
By Lani Knutson Lani is mum to two wonderful sons have a rare form of Congenital Muscular Dystrophy (CMD) called SEPN1/SELENON related myopathy. She offers a glimpse into their family life as they raise their energetic boys. If you are a parent of a child with special needs, a disability, or a rare disease, you’ve …
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