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Are you a rare family?

By Heather Renton & Rebekah Devlin Despite widespread medical advances, children with a rare disease often never receive a diagnosis. Syndromes Without A Name is there to offer help. Syndromes Without A Name (SWAN) Australia is the only organisation that provides information, support, connection and systemic advocacy for these families. “Rare isn’t that rare,” says …

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The reluctant advocate

By Fiona Lawton This right to vote is the basic right without which all others are meaningless. It gives people, people as individuals, control over their own destinies – Lyndon B. Johnson I can safely say that I haven’t always been interested in politics. I’d often switch off at dinner party conversations that discussed ‘government fiscal policy’, …

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An alternate support worker solution for families in regional areas

Sponsored content Finding reliable and trusted support for their daughter Nikita has always been a top priority for parents Trish and James. Nikita, has Lennox-Gastaut syndrome, a severe form of epilepsy. She was born a healthy baby, but at 6 months of age she started having fits, and it gradually got worse until she was …

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