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My rare family

By Kelly Wilton February 28 is Rare Disease Day. A time for everyone to come together to support, celebrate and continue the wheels of change for the rare disease community. It is estimated that 25,000 babies are born with a rare genetic syndrome each year in Australia. People living with a rare diagnosis often have …

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How do I do it?

By Julie Fisher People often tell me they don’t know how I do it when it comes to my son Darcy because he has Down syndrome. Well, at least I think that’s why they say this. It’s actually never mentioned.  I’ve always found this quite puzzling because he is, first and foremost, my son. The …

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