By Naomi Sirianni Parenting: even without disability, we love them but damn we want our own time, right? Or do we? The long summer school holidays are always a pickle when it comes to prioritising and balancing (or juggling) work and keeping the kids entertained. My husband and I share the load where possible and …
The balance of having time away from our kids, does it exist? Read More »
We sat down with Julie Fisher and chatted about the change that comes from being a parent-carer to a child with a disability. How has being a special needs mama changed you? Julie: My life as a special needs mama began before my son Darcy was born as we received a positive diagnosis of Down …
By Rachel Williams February 14 is HeartKids Sweetheart Day – raising funds and much-needed awareness of congenital and childhood-acquired heart disease. When one of your miracle babies is diagnosed with a major heart condition in-utero, and then needs major surgery during the middle of a global pandemic, it’s an understatement to say the journey of …
By Nicole Hurley It’s not an advent calendar for everyone, it’s for parents of children with additional needs who really struggle in the 6-7 week summer break (that’s about 42 days give or take depending on the school setting your child is in, and no, I am not counting!) It’s not about not wanting to …
There needs to be a new countdown calender for back to school Read More »
By Rebecca Glover I popped on here with the thought to sit and write an inspiring, uplifting and encouraging article for the start of 2023, and believed I knew what would flow on to the page. However, I made one mistake- I found my little green book dating back to the year 2009. This little …
By Naomi Sirianni January is Coffin Siris Awareness month. Pot luck. It’s just pot luck. Those words bellowed out of our geneticist’s mouth 6 years ago. Words we won’t forget. Our youngest son Archer is 10 years old and has a rare genetic syndrome called Coffin-Siris Syndrome. These rare syndromes stay relatively unknown but all …
By Rebekah Devlin I remember every detail of that day in September, 2017. The day an OT excitedly ticked off my two-year-old son’s atypical behaviours on her checklist, as I sat numb, not really understanding what she was saying, but understanding enough to know my world had just fallen apart. Does he like his nails …
By Christine Cronin If I could go back, right back to the very beginning, I would sit with me a little longer. I would tell myself that my life is about to change. Not instantly, it’ll feel “normal” for a little while, but then a continuous, unravelling of change will take over my entire world. …
By Monique Cain We’ve been eligible and encouraged to employ a support worker for the past few years but haven’t felt completely comfortable to explore the option or accept the help. It’s always been a challenge for us to leave our children in others people’s care and we’ve felt extremely uncomfortable receiving additional assistance. It’s …
The importance of asking for and accepting support Read More »
By Christine Cronin I’m so thankful for 2022. Despite numerous difficulties faced, by leaning right into my special needs parenting role, there were an abundance of lessons I may not otherwise have discovered. I learnt that, your heart has to be in it. Always. You have to *want* to be here. If your hearts …
A source mama reflects on her learnings from 2022 Read More »
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