By HEATHER RENTON My pregnancy was fairly uneventful. I think in my gut, I knew something about my daughter was different when I was carrying her. Was it instinct or was it because I had previously miscarried? I just know in my one-hour labour, I wanted her out quickly so I could make sure the …
Lauren Brown has been a stay-at-home mum for the past eight years, caring for her two autistic boys, Archer nine, and Oliver, seven, while dad Derek worked long hours to support the family. Once the boys were both in school, Lauren had hoped that she might finally be able to take some time for herself …
Game-changing Direct Employ service provides peace of mind for busy mum of two Read More »
By REBEKAH DEVLIN How would you feel if someone you love sat beside you, telling a stranger everything you had done wrong this week? All the areas you struggled with. Times you’d said unkind things. Been impulsive. Vindictive. Totally overwhelmed. Fearful. How you’d struggled to walk up some stairs, been clumsy and dropped something. Talked …
Not in front of the children – time to rethink the way we do therapy Read More »
By Melissa Goffredo Jeans for Genes Day (Friday, August 5) is an important and rare opportunity for parents of children with genetic disorders to raise awareness of little-known yet debilitating genetic conditions. And they don’t come much rarer or debilitating than a condition known as CDKL5. My two-and-a-half-year-old daughter Annabelle lives with this condition. To …
My daughter has a rare genetic disorder. This is why awareness days are important. Read More »
By Caroline White If someone asked me to picture what a ‘carer’ looked like, I would probably see someone in a hospital style uniform and imagine someone looking after an elderly person or someone with very complex needs. I would imagine them popping round daily to administer medicine, help them out of bed, get dressed, …
As any mum of a child with a disability knows, the juggle is real, and at times, it can be overwhelming. For single mum of two, Virginia Knight, life was so busy caring for her son Noah, 13, who has Angelman Syndrome, that she was unable to focus on her own needs and that of …
Family holiday now a reality thanks to unique Direct Employ service Read More »
By Sarah Thomas Sarah Thomas’ son Lewis has cerebral palsy, epilepsy, ADHD and is PEG-fed as the result of suffering a major stroke when he was three. Lewis and his twin brother, Cohan, are now 14, and life is still chaotic. But this one piece of advice helps keep things in perspective. I recently attended …
By Kelly Wilton When we are first told that our child has a disability, we get overloaded with information. In an instant, everything changes. There is no little red book for parenting a child with a disability – no ticking off age-appropriate milestones which our child may or may not achieve. We are pulled in …
Having an autistic child means that Leanne Tuckerman never has much time to herself. Even when she does have time away from her son Thomas, she is still busy advocating for him, to ensure he gets the care and opportunities he needs to flourish. Thomas, 11, was diagnosed as autistic when he was five years …
Unique Direct Employ service provides freedom for mum and her autistic son Read More »
We’ve all been there. Unsolicited advice at the MOST INAPPROPRIATE times. Comments about “naughty” children who “tantrum” and you’re clearly just a parent who can’t control their child – “they just need a good old-fashioned smack”. Or as you push your child in a disability pram, or in the trolley, “they are too old for …
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