By Susie Hopkins Should. Sometimes I wish the word should were banned from the English language. There are so many things us mamas ‘should’ be doing to look after ourselves. Yet for most of us, caring for ourselves is usually at the bottom of the list due to the huge load we’re managing. Which is …
Three go-to, do anywhere relaxation practices to keep you sane Read More »
By Natalie Brobin As I became educated on my daughter’s genetic disorder called Turner syndrome (TS), the more I worried about the many possible health issues, learning issues and social issues that my daughter could have. I worried about so many issues that never actually happened! I worried she would have a hard time learning in …
One of the most important things you can do after your child’s diagnosis Read More »
By Natalie Roberts-Mazzeo A shock diagnosis. Another night in hospital trying to sleep in between your child’s cries and beeping machines. Walking the hallways of your home with an unsettled child. Another missed milestone. Sitting in a pre-op hospital ward, drinking coffee out of styrene cup. Making a call to a new specialist and having to …
By Ariella Lew One of the greatest privileges of my work is talking to families from all walks of life and being allowed a glimpse into their world. One of the things that all of these families have in common is a mother, a step mother, a grandmother or a mother figure who fights like …
By Lani Knutson At our older son Peter’s 4-month check up, we mentioned to his pediatrician that we noticed that he only turned his head to the left when he laid on his back. We felt something was wrong, but his pediatrician dismissed us saying that he was fine and he would grow out of …
By Natalie Brobin “You know more than the cardiologist!” My husband, Steve, said this after an appointment with our daughter’s cardiologist. Previously, I had tried to explain to the doctor what I had learned at a recent conference about our daughter’s genetic disorder, Turner syndrome (TS) and how it related her cardiac issues. He didn’t …
By Susie Hopkins It’s not surprising that mums who care for kids with disabilities are more likely than most to have to contend with a lot of difficult thoughts and emotions. During tough times it is both normal and healthy to experience a full range of emotions – including for example anger, fear and even …
How to deal with difficult thoughts and feelings Read More »
by Susie Hopkins Parenting a child by yourself is tough. Parenting a child with special needs by yourself is even more so. People often ask me how I do it. They even call me a super mum and generally admire how, for the most part, things are going really well. But they only seeing part …
How I parent my autistic son solo, run a business and thrive (mostly) Read More »
The Healthy Mothers, Healthy Families program is full of informative ways to help improve the wellbeing of mothers of children with a disability. Through identifying changes you want to make, it will guide you along the process of working out what to change, how to change, and then the process for the change to occur. …
by Natalie Waddell I am Natalie. I live in Brisbane with my husband, two sons and two 4 legged Oodles. My youngest son, Tom, has 1P36 Deletion Syndrome. He is a determined, out-going, cheeky, stubborn and mostly happy tween! He is also non-verbal and incontinent, has complex health issues, receives his nutrition via tube, unable to walk independently and …
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